Thursday, May 29, 2014

Officially diagnosed: The Grief cycle of autism


I hesitated before stepping back into the doctors office. I reminded myself to breathe and coached my fingers on how to turn the door knob. If nothing else I told myself I sure as hell would walk into that evaluation with my shoulders back and head held high! 

Despite having the best of intenions I felt my shoulders and vulnerable heart falling, I bit my lower lip when "moderate autism" and "level two" rolled easily off of  the doctors tongue. He was a specialist this scenario was routine for him.....but it wasn't for me.  It was so very personal. I didn't want life to be difficult for my son. The bandaid I had so carefully placed on my heart was abruptly ripped off.  The relief I had expected to feel was crippled by the guilt. The guilt I had been hanging onto for dear life. In some strange way it made me feel like I had power in a situation where I felt hopelessly and completely  helpless! 

 The doctor seemed surprised on how quickly the tables had turned the poor man didn't have a chance to answer my last question before I would shoot off another. I needed to know if this was my fault. Was it something I did wrong?

The tension in the room was quickly escalating. 
Hot tears ran down my face. My sweet husband  grabbed me by the shoulders and begged for me not to do this to myself. He told me that it didn't matter what they said, it would never change how much we loved him. His voice caught in his throat, I watched his adams apple dance when he told me  "I wouldn't trade him for any boy in the world....I would never change anything about him!" I could hear the desperation in his voice and I knew he meant it.

Either would I.

The doctor had simply confirmed what we had known in our heart for years at this point!
It felt so raw, the pain was so real.. all over again. Strange how that is! So we did the only thing we could do. we prayed for help...for guidance and direction....

More on the miracles that transpired later :)

For now: I loved this article on the grief cycle and heck the fact that they mentioned you should grieve as many times as you need to!

Now onto a sweeter note Jett is a very own living breathing alarm clock! The first thing I hear is a "goo mornin' " usually inches away from my face....Then he peels off my covers and tells me "Mama up" I kind of love that!..........and other morning I ask my little early bird to bring mama the I-pad. I think he loves those types of morning best ;)


She is a delight:Two years old









Winnie you turned two last week, how can that be?

 My mind keeps wondering to the moment I met you. You were the most beautiful baby I had ever seen (your brother being he most handsome;) I was in a different place back then, I was a different person. I remember when I held you for the first time I feared my heart would burst....it was a legitimate concern! I felt like I knew you, and that I needed you. That we would need each other....to make it. And oh how I have needed you!

You fit into our family beautifully! Your timing was nothing short of divine!  Meer weeks after you were born we realized that your brother had delays.....we were devastated. As a newborn I would scoop you up even if you were sleeping (waking up a sleeping baby might as well be a sin.....but I ached to hold you;) I would snuggle you close and gently pat your little bum. Breathing in your sweet contentment feeling of your essence. It was always enough quiet my broken heart.

You make our little family seem so complete!

You and your brother are the very best of buddies! It has been the delight of my life watching you play together and the unspoken love you have for each other!

Definitely frien-enemies at its finest. I am constantly dancing the line of bursting out in laughter or wanting to scream out in frustration! The only thing you guys seem to love more than each other is to tease each other! You guys both will yell at each other in dismay things that is mama is not able to decipher!

We are still working on communicating with words....in english ;)

...You are so tiny even for two and a bit impulsive you will suddenly furrow your little eyebrows do a duck face with your adorable little lips and start hitting your brother...Even Jett laughs when this happens.....so needless to say your daddy doesn't stand a chance. Im the one who has to put my best poker face on and remind you to be kind....you are adorable though....and so loved. My hope is that you and your brother will always remember that!

At two you are both spunky and shy both sugar and spice you are nothing short of a delight. You love Ana from Frozen, purses, putting on lipstick and trains!

You still love naps....which is perfect because I love them too!

Now on to the party! It was a joint party with your Daddy and Benson! I't pretty sure you ate you weight in cake......Needless to say you had a happy day.


We love you!

happy birthday wynn bug!



Wednesday, May 28, 2014

Paleo family


Our little family has been on a strict diet of pizza! 3x times a day 7 days a week....;)

there has definitely been some variety in our diets  (as in Papa Johns, Murphys's, little Caesars...ect ;) But today is the day this family is embarking on a new journey...We are going paleo! In hopes of providing healing for Jetts GI!

We started things off with a bang and made  real deal chocolate chip cookies....Winnie saw right through them ;).....enjoy the recipe here!

Happy Wednesday friends!